Wednesday, September 12, 2012

Nutriiveda - looking for an impartial forum

04/9/2013: There are neutral and impartial groups and blogs available to discuss Nutriiveda and other interventions, both on Facebook and on Yahoo groups. Please look around and be aware that NOTHING works for everyone.

Hello fellow moms in the Autism journey (and other journeys)...

My son started on Nutriiveda (Original Formula) last week. While the website and the seller that promote Nutriiveda (Pursuit of Research) claim a 100% success rate, just a casual perusal of the world wide web indicates that this is not the case.

We started as suggested, after stopping all other supplements that he was on. The above mentioned sources also mention a turn-around time of 3-4 days, which have passed, with not many changes. In fact, he developed a rash, and his mood has been somewhat worse.

I am looking for an impartial forum where Nutriiveda might be discussed. Apparently the Apraxia yahoo group, where Nutriiveda is predominantly discussed, is actually moderated by the seller, making this a huge conflict of interest.

We have stopped Nutriiveda for now (after 4 days), and he is back to his supplements to see if the slight regression will reverse. However, "die-off" is always a convenient explanation, and I am debating whether to stick to it and keep moving or not.

I would love some impartial advice, and I am hoping a google search of Nutriiveda will lead someone here!


5 comments:

Anonymous said...

Hi- I came across your Blog and know of the Group that you referred to. The "seller" on that group has become an independant distributor or "Independant Executive" for a Company called Zrii. Because it is a multi level marketing Company, there are many people selling the products, and each one of them has their own sales web site- the person you are referring to is just one of them. Yes- it does appear that mostly good reviews of Nutriiveda are discussed on that Group. I would suggest that you call Zrii if you have any further questions or concerns. I would think that they should be able to answer questions about the product that they produce. We did try this product for our child and it did not work as we hoped it would. We noticed no difference after even one month. We eventually stopped using it because it was getting to expensive to keep paying for something that did not seem to be helping. When we stopped using it, there were no regressions. I will look for you on Facebook and will send you a friend request if you are there. Through Facebook, I can refer you to another Facebook oriented group where you will be able to talk to others who also have current or past experience with trying this with their kiddos...(lots of unbiased opinions as you seem to have a desire to hear).

Unknown said...

Hi I think I did receive a friend request from facebook, but I wasn't sure if that was you. Do you mind emailing your initials to vishlist.blog@gmail.com ?

Thanks!

Anonymous said...

My son started NV on Sept. 29th after me watching the group you are talking about for about 6 months. After talking to our doctor, we could find nothing in it that would harm our child. We had hit a plateau in speech development and gave it a try. My son is 2 1/2 and has suspected apraxia and sensory issues. We have not changed anything else, but he has really made great progress going from 1-2 word utterances to mostly 3-4 words. He still has difficulty at times accessing the words that he is wanting. Can I tell you it is the NV? No. But I cannot discount that it might be providing something that he needs and would not take him off right now. Don't know if this is helpful at all, but just wanted to share my opinion as a parent of a child currently taking NV, that is not at all associated with the company and paying for it every month. I typed your name in on facebook but was not sure which one you were... If you want to give me more info I will try to find you again.

Anonymous said...

Hi- I came across your Blog again and remembered that I did find you on FB and I did send you a private message on FB. This was sometime around last October. You most likely have not seen this message because it went to what is called the "other folder" on FB. Messages from folks who are not a given user's FB friend end up in this folder. FB does not send notifications about messages that are in this folder, so if you do not know about it, you most likely will never see messages that are sitting there. To find your "other folder" on FB, go to your FB Home Page. Look to the far left...right under your picture. Click on "messages", then click on "other", which will show up to the direct right of the "Inbox".

Anonymous said...

Please read DANGEROUS GRAINS by James Braly MD and ron Hoggan MA Pay attention to page 207 it has research and other books mentioned on the link of autism and grain consumption/celiac disease. REad the whole book as it is filled with unbelievable information.... HOPE THIS HELPS